Russ
Don said the perfect words "quality of life" My wife was a Respiratory Therapist and this saying came up often when a patient was confined to a ventilator. Its what really matters most.
You've gone above and beyond for this family so make your decision with a clear mind.
Sorry you have to be put in this situation.
Good luck
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Bill in SC --- Roland BK9 (2) Roland BK7M, Roland PK5 Pedals, Roland FP90, Roland CM30 (2), JBL Eon Ones (2) JBL 610 Monitor, Behringer Sub, EV mics, Apple iPad (2) Behringer DJ mixer