I've been sleeping on the floor and in a chair at Norton's children's hospital for 11 days.
Daniel, one of the two brothers and sisters Iam Guardian for was in for "debriding", which is cutting tomors away from his trachea, when it was discovered that the trache tube had been placed incorrectly. Daniel has an IQ of 47. He is 19. He went home one day after surgery to replace the tube, but pulled it out repeatedly all night.
My fanmily thinks I'm nuts. Thing is, I promised George and Janice (Daniel's grandparents...I was Guardian for both of them) that I'd take care of Daniel, his sister and mom (they arer all mentally challenged).
Keeping your word is not a bad thing. Sister has a 61 IQ has ADD and is a Type 1 diabetic.
I'm alol they have. Mom was turned down as guardian. The only other option for both of these youngsters was incarceration in a state across the country. Mom would not be able to handle that.
Th sad thing is, I can't fix the problems. All I can do is keep them alive for awhile.
DAMN!
R.